Our Pregnancy Project team includes doctors, patients and an endocrine nurse. We are working to increase awareness of the risks of thyroid in pregnancy. Our goal is to inform the medical community and the general public about current research-based information on thyroid in pregnancy.
The results of the CATS study headed by Prof John Lazarus was published as ‘Antenatal Thyroid Screening and Childhood Function’ in the The New England Journal of Medicine in February, 2012.
Nikki Kieffer, Endocrine Nurse Specialist Dept of Diabetes and Endocrinology Leicester Royal Infirmary completed and published research entitled "Thyroxine replacement in pregnancy and pre-conception: An audit of patient and GP knowledge of guidelines and current clinical practice in Leicestershire.” Nikki Kieffer was also interviewed on Inside Health BBC Radio 4 about her research and thyroid in pregnancy on 28 Feb 2012.
Prof John Lazarus spoke at the German Thyroid Society, Berlin (Potsdam) together with Roberto Negro. They certainly are very interested about thyroid in pregnancy and screening leading to quite a lively debate.
Dr Shaio Chan spoke on Thyroid in Pregnancy at the BTF Milton Keynes local group meeting on 3 December, 2011.
NEWS - The American Thyroid Association published Guidelines of the American Thyroid Association for the Diagnosis and Management of Thyroid Disease During Pregnancy and Postpartum in summer, 2011. These guidelines have been endorsed by the British Thyroid Association.
The Pregnancy Project Group welcomes Dr David Kerbel, General Practitioner, and Dr Penny Clark, Consultant Clinical Scientist, NHS, Birmingham.
Prof John Lazarus MA MD FRCP (Lon Edin Glas) FRCOG FACE and BTF Trustee: 'Thyroid problems are common in pregnancy. This project will help to inform both patients and health care workers about the effects of thyroid disease in pregnancy and the treatment. I’m proud to play a part in the work'.
Dr Shiao-yng Chan, PhD MRCOG, Health Foundation Clinician Scientist Fellow, Senior Clinical Research Fellow, University of Birmingham, Honorary Consultant Obstetrician and Lead Consultant for the Endocrine Antenatal Clinic, Birmingham Women's Hospital Foundation Trust: 'In my clinical practice as an Obstetrician, I am struck by the significant lack of knowledge amongst pregnant women with thyroid disease about the potential impact their thyroid disorder has on their pregnancy. That is why many do not seek any pre-conception counselling and some are not motivated to be compliant with treatment'.
Dr David Kerbel, MBChB MRCGP, inner city GP working in Leicester. He is a GP trainer and appraiser. In addition Dr Kerbel teaches seminars about primary care hypothyroid management to registrars training to be GP's. "My interest in hypothyroidism began with my wife's diagnosis and struggle to get adequate treatment. I am concerned about medical management of hypothyroidism which doesn't listen and respond to patients (but just manages blood test results.) I believe in aggressive treatment with levothyroxine aiming to get TSH below 2 (not just within screening range)."
Nikki Kieffer, Endocrine Practice Nurse: 'I have come to realise that women who are already known to be hypothyroid are not receiving optimal care and often under-treated [with levothyroxine]. The baby is most in need of maternal thyroxine during the first trimester but usually these women are not seen in clinic until well into their second trimester. My aim would be to educate GPs and midwives to be aware of the importance of optimal replacement before conception or at the very least from the beginning of pregnancy'.
Dr Penelope Clark, Consultant Clinical Scientist, NHS, Birmingham
Janis Hickey, BTF Director and thyroid patient: 'When I was pregnant with my first baby 25 years ago there was not a lot of information for expectant mothers with thyroid disease. Now things have moved on: research has led to better understanding and better health. We want to make sure that all women with thyroid disease are informed about the action to take to ensure good health for themselves and their babies'.
Julia Priestley, BTF Project Facilitator: 'Knowing the risks of thyroid disease in pregnancy creates an urgency for awareness. I am glad to be a part of such important work'.
Leaving a Legacy
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28 January 2014
Thyroid Cancer Patient Information film
Butterfly Thyroid Cancer Trust have produced a new film for patients who have been newly diagnosed with thyroid cancer
Patient information event to take place for people with Thyroid Eye Disease
The meeting will be held on 16 May 2014 in Newcastle upon Tyne and will be a fantastic opportunity for patients to meet European and UK experts, find out about the latest advances, and get involved in discussions about the priorities of future research into TED.
Volunteers wanted for patient film project
BTF is looking for people to take part in 3 short films we'll be making about hypothyroidism, hyperthyroidism and thyroid cancer.
Thyroid Eye Disease and Smoking Cessation Leaflet
If you've had Graves' and/or TED then please read a new smoking cessation leaflet and let us have your feedback.
Thyroid Eye Disease Study Team (WALES)
The NISCHR CRC is looking for two volunteers with experience of thyroid eye disease to take part in a study.
Response to Petition #PE01463 to Scottish Parliament
The BTF has submitted a response to Petition #PE01463 to the Scottish Parliament about the treatment of thyroid and adrenal disorders.
5 November 2013
Thyroid Eye Disease Research
Congratulations to Matt Edmunds of the University of Birmingham who has been awarded the Fight for Sight/BTF and TEDct Research Award.
23 October 2013
Mercury Pharma report a shortage in the supply of carbimazole 20mg
Drug Availability Updates
The latest news and updates from pharmaceutical companies can be found below.
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British Thyroid Association British Thyroid Association - medical professionals encouraging the highest standards in patient care and research.
British Association of Endocrine and Thyroid Surgeons - the representative body of British Surgeons who have a specialist interest in surgery of the endocrine glands (thyroid, parathyroid and adrenal)