Thyroid Cancer Project


Even though thyroid cancer is not as common as other thyroid problems, according to Cancer Research UK thyroid cancer is within the top twenty most common cancers for women in the UK. Women have a higher risk of developing thyroid cancer although men can develop thyroid cancer. Almost half of all thyroid cancer patients are below the age of 50. Thyroid cancer is on the rise in UK as well as other countries in Europe. Since 1993 thyroid cancer rates have doubled among women.

booklet_thyroid_cancerIf you have been diagnosed with thyroid cancer or know someone who has been diagnosed, order your copy of British Thyroid Foundation’s Thyroid Cancer For Patients By Patients today.

About the Thyroid Cancer Project

Letters from Thyroid Cancer Patients

Low-Iodine Diet

 Patient Journeys - four short films




June 2015

There have been some encouraging results published regarding the effectiveness of a new drug developed by Eisai called lenvatinib for the treatment of papillary and follicular thyroid cancer which is resistant to radioactive iodine. This drug however, is still a long way from being available for clinical use but Eisai are currently passing it through the regulatory authorities processes.

April 2015

The BTF thyroid cancer group has produced a document on Targeted treatment for Advanced Thyroid Cancer - Frequently Asked Questions to help people with questions about new and emerging treatments.

February 2015

BTF has produced the following information about travel and travel health insurance

December 2014

Macmillan now have a dedicated Thyroid Cancer Information Nurse whose role is to provide support and information to people affected by thyroid cancer throughout the UK. For further information please go to the Macmillan website

BTF has set up a Closed Facebook Group for people who have had a diagnosis of thyroid cancer. It aims to be a safe place for people to share information, share experiences and suppor one another. If you woudl like to join the group please email This email address is being protected from spambots. You need JavaScript enabled to view it.  

 Butterfly Thyroid Cancer Trust has produced the first ever comprehensive patient information film about thyroid cancer and is delighted to announce the launch of "Thyroid Cancer Uncovered: A Patient's Guide "The film is a comprehensive step by step guide about the disease and treatment from diagnosis to long term follow up. Its chapters are presented by leading UK thyroid cancer clinicians. It also follows four patient journeys. The DVD is free to all UK patients. The film has been endorsed by the BTF, the BAETS, British Thyroid Association, AMEND, TCSG Wales, Hypoparathyroidism UK and Thyroid Cancer Alliance. Please click on the image below to see a teaser. For more information or to order a copy please contact This email address is being protected from spambots. You need JavaScript enabled to view it. at Butterfly.

Image for cancer film




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28 July 2015
Congenital Hypothyroidism

Please take part in a short questionnaire to share your experiences of having a child diagnosed with congenital hypothyroidism.




31 March 2015
BTF Research Award 2015

Congratulations to Dr Carla Moran who has been awarded this year's Research Award for her work into hypothyroidism.




10 March 2015
Patient journeys - BTF films

We are delighted to have produced a series of short films featuring people talking about their experience of hypothyroidism, hyperthyroidism and thyroid cancer.




22 January 2015
Fight for Sight and BTF Co-fund New Research

A research grant co-funded by Fight for Sight and the British Thyroid Foundation has been awarded to researchers at London's NIHR Biomedical Research Centre at Moorfields Eye Hospital NHS Foundation Trust and UCL Institute of Ophthalmology




15 December 2014
Thyroid cancer - patient journeys

BTF has produced four short films for patients with thyroid cancer. Please get in touch if you would like more information or support.




5 November 2014

Patient Knowledge of antithyroid drug-induced agranulocytosis - article published in the European Thyroid Journal.




July 2014 BTA Guidelines for the Management of Thyroid Cancer
These have now been published online. You can find them here or download them as a pdf here



July 2014 BSL Signed Information Clips
SignHealth have created a series of signed informational videos about thyroid issues. Find them on their website here



8 June 2014
Iodine supplements for a healthy thyroid

Information about the importance of taking iodine supplements and who needs them.




Drug Availability Updates
The latest news and updates from pharmaceutical companies can be found below.




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British Thyroid Association British Thyroid Association - medical professionals encouraging the highest standards in patient care and research.

British Association of Endocrine and Thyroid Surgeons - the representative body of British Surgeons who have a specialist interest in surgery of the endocrine glands (thyroid, parathyroid and adrenal)