Newsletter

Issue 81 - September 2012


Monday 17 September 2012

The September issue of BTF News (issue 81) is now published!

This issue leads with a report of a recent conference about the UK iodine status. Leading experts met in London to discuss the problem of iodine deficiency in the UK. The meeting, organised by the BTF in conjunction with the British Thyroid Association (BTA) and the International Council for the Control of Iodine Deficiency Disorders (ICCIDD), called for the development of a national strategy.

In this issue:

  • Lead: Iodine status in the UK - the way forward
  • Medicines watch
  • BTF research news: Dr Peter Taylor, winner of the BTF 2011 Research Award, describes progress to date with his study on thyroid function and body composition in children
  • BTF research news: Shirley Langham, winner of the 2012 Evelyn Ashley Smith Award, describes her project to research maternal iodine status and congenital hypothyroidism
  • Research update: The SORTED study
  • Article: 'Singer of the year' Toby Spence diagnosed with thyroid cancer
  • Article: 'Reaching out' - Vivienne Revis writes about her experience talking with the public at the Harrogate Spring Flower Show
  • My story: Paula Tracey writes about her experience with juvenile myxoedema
  • 'BTF in bloom' pictures from the Harrogate and Gardening Scotland flower shows

Regular sections include: Letter from BTF HQ, News about the BTF, Project Updates, Fundraising & Donations, Letters & Comments, and a round-up of local group activities

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New technique ‘lights up’ parathyroid glands during surgery

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News

Leaving a Legacy
Help to make a real difference by remembering BTF in your Will

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23 April 2014
UK wide study of patients with Differentiated Thyroid Cancer

A UK wide study is being planned to determine the long term health outcomes following the treatment (with surgery, radio-iodine, thyroxine) of patients with Differentiated Thyroid Cancer.

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23 April 2014
The latest news about Levothyroxine and Eltroxin tablets from Andipharm Mercury (AMCo)

AMCo have produced literature to help clear up any confusion for some patients about which products are available, and whether products marketed by AMCo as branded Eltroxin or as generic levothyroxine are the same or different.

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2 April 2014
BTF Christmas cards for sale

We have a selection of BTF Christmas cards which we're selling off at reduced prices.

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28 January 2014
Thyroid Cancer Patient Information film

Butterfly Thyroid Cancer Trust have produced a new film for patients who have been newly diagnosed with thyroid cancer

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Patient information event to take place for people with Thyroid Eye Disease
The meeting will be held on 16 May 2014 in Newcastle upon Tyne and will be a fantastic opportunity for patients to meet European and UK experts, find out about the latest advances, and get involved in discussions about the priorities of future research into TED.

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14 January
Volunteers wanted for patient film project

BTF is looking for people to take part in 3 short films we'll be making about hypothyroidism, hyperthyroidism and thyroid cancer.

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8 January
Thyroid Eye Disease and Smoking Cessation Leaflet

If you've had Graves' and/or TED then please read a new smoking cessation leaflet and let us have your feedback.

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12 December
Thyroid Eye Disease Study Team (WALES)

The NISCHR CRC is looking for two volunteers with experience of thyroid eye disease to take part in a study.

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2 December
Response to Petition #PE01463 to Scottish Parliament

The BTF has submitted a response to Petition #PE01463 to the Scottish Parliament about the treatment of thyroid and adrenal disorders.

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5 November 2013
Thyroid Eye Disease Research

Congratulations to Matt Edmunds of the University of Birmingham who has been awarded the Fight for Sight/BTF and TEDct Research Award.

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23 October 2013
Carbimazole shortage

Mercury Pharma report a shortage in the supply of carbimazole 20mg

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Drug Availability Updates
The latest news and updates from pharmaceutical companies can be found below.

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Current Surveys

We have surveys for which participants are required.
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Support the BTF by getting a BTF key ring
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Soy? Coconut Oil? Kelp? Don’t know what to believe? False claims, quick fixes and promises exposed here.

 


BTF-Thyroid.org
Associated with:

British Thyroid Association British Thyroid Association - medical professionals encouraging the highest standards in patient care and research.

British Association of Endocrine and Thyroid Surgeons - the representative body of British Surgeons who have a specialist interest in surgery of the endocrine glands (thyroid, parathyroid and adrenal)