Telephone Support

 

BTF Telephone Support Contacts

Our volunteer telephone contacts are happy to take calls on the thyroid disorders listed that they have experienced. Please see the key below.

Angela (U) 01943 873427 Karen (U) 01628 529212
Carole (FC,CS,RAI) 01204 853557  Nia5 (U) 01942 819195
Colin (O) 02476 711577 or 07973 861225 Olwen (O,RI,U) 01536 513748
Dave (PC,CS,RAI) 07939 236313 Penny (Ch) 01225 421348
Gay (G,TS) 0208 735 9966 Peter5 (TED,GR) 01200 429145
Helen (O,TS,TED) 01858 525770 Richard (U) 01483 576785
Jackie (PC,CS) 01344 621836  
Jane (GR, RI,TED,G,U) 01737 352536  

 

BTF Local Coordinators

Our local coordinators organise meetings and those with phone numbers below will also be happy to take calls on thyroid disorders listed that they have experienced. Please see the key below.

  • Belfast Ursula (U)
  • Birmingham Janet (PC,CS,RAI,PH) 0121 6287435
  • Cambridge Mary8 (GR,RI,U) 01223 290263
  • Camborne/Redruth (Cornwall) Daphne
  • Edinburgh Margaret (PC) 0131 6647223
  • Leeds (Wharfedale) Caroline (O,U) 0113 288 6393
  • London Denise
  • Milton Keynes Wilma (U) 01908 330290
  • Newcastle & North Tyneside This email address is being protected from spambots. You need JavaScript enabled to view it.
  • Notts/Derby Bridget5 (GR,TS,U,PH) 01623 750330
  • Peterborough Jennie
  • Swale (North Kent) Patricia (U) 01795 661157 or 07799 805192

 

Key

The key will signpost you to the appropriate person with your thyroid query. The initials listed behind the telephone contact name are explained below.

1 2pm to 8pm Tuesdays and Wednesdays RAI Radioactive iodine (I-131) ablation
210am to 12 noon weekdays GR Graves’ disease
3 Afternoons only Ch Thyroid disorders in children
4 7pm to 9.30pm G Goitre
5 After 6pm weekdays and anytime weekends C Cancer of the thyroid
6 Not available to take calls RI Radioactive iodine treatment for an over-active thyroid
7 4pm to 6pm Monday, Tuesday and Wednesday TS Thyroid Surgery (non-cancer)
8 2pm to 7pm weekdays FC Follicular cancer of the thyroid
TED Thyroid eye disease
U Under-active thyroid
PC Papillary cancer of the thyroid
PH Post-operative hypoparathyroidism
ITSH Isolated TSH deficiency
HCN Hürthle Cell Neoplasm
O Over-active thyroid
CS Thyroid cancer surgery

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News

Leaving a Legacy
Help to make a real difference by remembering BTF in your Will

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2 April 2014
BTF Children's Conference

Still a few days to book a place for your family to attend the BTF's first conference for children and their families and carers.

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2 April 2014
BTF Christmas cards for sale

We have a selection of BTF Christmas cards which we're selling off at reduced prices.

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28 January 2014
Thyroid Cancer Patient Information film

Butterfly Thyroid Cancer Trust have produced a new film for patients who have been newly diagnosed with thyroid cancer

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Patient information event to take place for people with Thyroid Eye Disease
The meeting will be held on 16 May 2014 in Newcastle upon Tyne and will be a fantastic opportunity for patients to meet European and UK experts, find out about the latest advances, and get involved in discussions about the priorities of future research into TED.

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14 January
Volunteers wanted for patient film project

BTF is looking for people to take part in 3 short films we'll be making about hypothyroidism, hyperthyroidism and thyroid cancer.

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8 January
Thyroid Eye Disease and Smoking Cessation Leaflet

If you've had Graves' and/or TED then please read a new smoking cessation leaflet and let us have your feedback.

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12 December
Thyroid Eye Disease Study Team (WALES)

The NISCHR CRC is looking for two volunteers with experience of thyroid eye disease to take part in a study.

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2 December
Response to Petition #PE01463 to Scottish Parliament

The BTF has submitted a response to Petition #PE01463 to the Scottish Parliament about the treatment of thyroid and adrenal disorders.

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5 November 2013
Thyroid Eye Disease Research

Congratulations to Matt Edmunds of the University of Birmingham who has been awarded the Fight for Sight/BTF and TEDct Research Award.

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23 October 2013
Carbimazole shortage

Mercury Pharma report a shortage in the supply of carbimazole 20mg

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Drug Availability Updates
The latest news and updates from pharmaceutical companies can be found below.

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Current Surveys

We have surveys for which participants are required.
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BTF-Thyroid.org
Associated with:

British Thyroid Association British Thyroid Association - medical professionals encouraging the highest standards in patient care and research.

British Association of Endocrine and Thyroid Surgeons - the representative body of British Surgeons who have a specialist interest in surgery of the endocrine glands (thyroid, parathyroid and adrenal)