Children

The Project

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Thyroid disease is rare in children and in newborn babies, however, if your child is diagnosed with thyroid disease, it can be distressing. There is little information and support for children with thyroid disease, and for parents/carers. The British Thyroid Foundation is working to fill this gap.

Current Supporters of our Children's Project:

Bettys & Taylors or Harrogate 2011 Grant Award
Society for Endocrinology 2011 Grant Award

What the BTF Children’s Project has accomplished so far:

We have created a comprehensive website area for children with thyroid disease, and their parents/carers, which includes

  • Dr Tim’s News – Brief articles by Dr Tim Cheetham, consultant paediatric endocrinologist, explaining thyroid disease as it relates to children;
  • Letters from Parents, Carers and Children to ‘Dr Tim’ with questions about thyroid disease;
  • Just for Children - Information for children that explains hypothyroidism and hyperthyroidism that explains thyroid disorder in language childrend can understand. These articles can be read with a parent/carer to help the child understand their condition.
  • We have telephone support contacts for parents/carers of children with a thyroid condition.
  • In partnership with our medical advisors and parents/carers, we held the first ever Children's Conference, where children and their families shared experiences and received support and information from the medical profession and BTF.

What the BTF Children’s Project will accomplish:

  • Many parents feel at a loss when questions arise about symptoms, treatment, care and future health. It is with this is in mind that we are publishing Thyroid conditions in babies, children and young people: A guide for parents and carers – an informative booklet with practical information and case studies to guide families through their child’s illness. This booklet will be released on our website soon.
  • Dr Tim Cheetham news articles for the Dr Tim’s News page.
  • We will continue to answer any medical queries concerning children and thyroid disease and, with permission, post questions and answers on the Letters from Parents, Carers and Children page on the BTF website.
  • We wish recruit more telephone contacts to support children with thyroid disease and their families; the volunteers will be parents/carers whose children have experienced conditions such as thyroid eye disease, hypothyroidism, Graves’ disease, and thyroid cancer.

What BTF wants to accomplish:

  • We have applied for funds to create a short animated streaming video for our website to help children understand their condition. The film and various interactive learning games will provide children with information in an accessible way and will use vocabulary that helps them express to others how they feel about their illness. The streaming video will provide a tool that parents can use to explain to their children what is happening.
  • We are designing a new poster that, we hope, will be displayed in all UK paediatric and endocrine clinics, and will inform parents/carers and children about the support that the BTF can offer and about the children’s area on the BTF website.
  • We are in the early planning stages of setting up a focus group involving parents/carers of children with thyroid disease. The focus group will meet to discuss the needs of families in order to be able to support them.

 

 

 

 

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News

25 September 2014
Fatigue in people who have an underactive thyroid

Please complete this survey to help research into physical activity and tiredness.

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July 2014 BTA Guidelines for the Management of Thyroid Cancer
These have now been published online. You can find them here or download them as a pdf here

 


 

July 2014 BSL Signed Information Clips
SignHealth have created a series of signed informational videos about thyroid issues. Find them on their website here

 


 

26 June 2014
Diagnosis of babies with Congenital Hypothyroidism

Please complete this survey to let us know about your experiences.

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8 June 2014
Iodine supplements for a healthy thyroid

Information about the importance of taking iodine supplements and who needs them.

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Drug Availability Updates
The latest news and updates from pharmaceutical companies can be found below.

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BTF-Thyroid.org
Associated with:

British Thyroid Association British Thyroid Association - medical professionals encouraging the highest standards in patient care and research.

British Association of Endocrine and Thyroid Surgeons - the representative body of British Surgeons who have a specialist interest in surgery of the endocrine glands (thyroid, parathyroid and adrenal)