Patient organisations

The British Thyroid Foundation
Provides support and information on all types of thyroid disorders

Suite 12, One Sceptre House, Hornbeam Square North, Hornbeam Park, Harrogate, HG2 8BP
Tel: 01423 810093
email: info@btf-thyroid.org
www.btf-thyroid.org

Association for Multiple Neoplasia Disorders – AMEND
Information on medullary thyroid cancer

AMEND Administrative Office
The Warehouse
Draper Street
Southborough, Tunbridge Wells
Kent TN4 0PG
Tel: 01892 516076
email: info@amend.org.uk
www.amend.org.uk

Butterfly Thyroid Cancer Trust
Information on thyroid cancer

P.O. Box 205
Rowlands Gill
Tyne & Wear NE39 2WX
Tel: 01207 545469
email: enquiries@butterfly.org.uk
www.butterfly.org.uk

Child Growth Foundation
Supports children and adults with growth disorders

21 Malvern Drive
Sutton Coldfield
B76 1PZ
Tel: 020 8995 0257
email: info@childgrowthfoundation.org
www.childgrowthfoundation.org


Children’s Leukaemia and Cancer Support (CLACS)
National professional body responsible for the organisation of the treatment and management of children with cancer

Children’s Leukaemia and Cancer Support (CLACS)
University of Leicester
3rd Floor, Hearts of Oak House
9 Princess Road
West Leicester LE1 6TH
Tel: 0116 249 4460
email: info@cclg.org.uk
www.cclg.org.uk

Children with Cancer UK

51 Great Ormond Street
London WC1N 3JQ
0191 564 5252
www.childrenwithcancer.org.uk


CLIC Sargent
For children and young people with cancer and their families

Helpline: 0300 330 0803
www.clicsargent.org.uk

Contact a Family
For families with disabled children

209-211 City Road
London EC1V 1JN
Helpline: 0808 808 3555
email: helpline@cafamily.org.uk
www.cafamily.org.uk

Hypopara UK
Provides information on hypo- and hyperparathyroidism

Hypopara UK
6 The Meads
East Grinstead
West Sussex RH19 4DF
www.hypopara.org.uk

Macmillan Cancer Support
Provides information on all types of cancer

89 Albert Embankment
London SE1 7UQ
Cancerline – Tel: 0808 808 0000
www.macmillan.org.uk

MedicAlert
A charity providing a life-saving identification system for individuals with hidden medical conditions and allergies

MedicAlert House
327-329 Witan Court
Upper Fourth Street
Milton Keynes
MK9 1EH
Tel: 0800 581420
email: info@medicalert.co.uk
www.medicalert.org.uk

The Patients Association
A national healthcare charity helping patients in the UK

PO Box 935
Harrow
Middlesex HA1 3YJ
Tel: 0845 608 4455
email: helpline@patients-association.com
www.patients-association.com

Teenage Cancer Trust
A charity devoted to improving the lives of teenagers and young adults with cancer

93 Newman Street
London W1T 3EZ
Tel: 020 7612 0370
www.teenagecancertrust.org

Thyroid Eye Disease Charitable Trust (TEDct)
Provides information and support for people with thyroid eye disease

PO Box 1928, Bristol BS37 0AX
Tel: 0844 8008133
email: info@tedct.org.uk
www.tedct.org.uk

Further sources of information

Advisory, Conciliation and Arbitration Service (ACAS)
Promotes employment relations
Tel: 08457 474747
www.acas.org.uk


GOV.UK
Information on disability living allowance

www.gov.uk

Information on the Disability Discrimination Act
www.gov.uk

Driver and Vehicle Licensing Agency (DVLA)
How to inform the DVLA about a medical condition

www.dft.gov.uk

EndocrineSurgeon.co.uk
Information about endocrine surgery for patients and professionals

www.endocrinesurgeon.co.uk

Equality and Human Rights Commission
Information on the Disability Discrimination Act

Tel: 0800 444 205
www.equalityhumanrights.com/your-rights/disability/the-law-about-disability-discrimination/

Patient UK
Comprehensive health information

www.patient.co.uk

UK Newborn Screening Centre
The UK Newborn Screening Programme Centre has responsibility for developing, implementing and maintaining a high quality, uniform screening programme for all newborn babies and their parents

http://newbornbloodspot.screening.nhs.uk

Professional organisations

British Association of Endocrine and Thyroid Surgeons
The representative body of British Surgeons who have a specialist interest in surgery of the endocrine glands (thyroid, parathyroid and adrenal)

www.baets.org.uk

British Society for Paediatric Endocrinology and Diabetes
Supports children with endocrinological disorders and diabetes mellitus

www.bsped.org.uk


British Thyroid Association
A non-profit-making learned society of professional clinical specialist doctors and scientists in the United Kingdom who manage patients with thyroid disease and/or are researching into the thyroid and its diseases in humans

www.british-thyroid-association.org

Society for Endocrinology
The major British society representing scientists, clinicians and nurses who work with hormones

22 Apex Court,
Woodlands,
Bradley Stoke,
Bristol BS32 4JT,
Tel: 01454 642200
www.endocrinology.org