14 March 2018 at 7-9pm
These meetings are an opportunity for people to come together and share their experiences and support each other as well as a chance for people to feed back into local services through research. Visiting speakers are invited to attend these or additional sessions according to identified need.
New members are requested to contact Michelle email@example.com first to book onto a session.
The Old Library, Muller Road Eastville BS5 6XP
We are extremely lucky to be hosting Victoria Kubiak, Nutritional Counsellor, Allergy Therapist and bodywork therapist (massage). Victoria runs a fatigue clinic in Bristol and has been a Nutritional Counsellor at Penny Brohn UK (cancer charity) in Bristol for 20 years.
firstname.lastname@example.org or phone 07759 150727
The group meets every second Wednesday of the month at 7pm.
In addition to the meetings below, the group has had monthly meet-ups and discussions and mindfulness sessions run by a local pyschological therapy service.
The group looked at people's experiences of using alternative testing services (like medichecks) and heard positive and negative experiences of managing thyroid diseases without access to routine testing (such as vitamin levels, T3, autoimmune antibodies, etc). We discussed people's experiences of adrenal dysfunction and the impact of delayed diagnosis upon the physical (e.g. liver, digestion) and psychological health. We compiled questions for Prof. Dayan who will be giving a talk to the group later in the year.
The group enjoyed a mindfulness session from Chris Bowles from Oasis Talk. It was really helpful as she went through two guided group meditation sessions, with some teaching and training in between about thoughts and feelings associated with living with and managing chronic illness.
April and May 2017
The first two meetings took place in a lovely setting called the Old Library on Muller Road. We have seven members of the group so far, with a mix of Grave's disease, Hashimoto's and hypothyroidism. We have initially come together to get to know each other and share our stories and experiences, and family members have also felt free to attend. During the second session, we briefly looked at some useful tools to map our symptoms and to consider their impact on our health, emotions and wider lives. Mapping symptoms can be a simple but effective way of seeing the whole picture of our health and communicating our experiences with others, including our healthcare providers. In the next group we hope to list some questions we feel are unanswered and use these to invite speakers to future sessions.