Meeting Information

Next Meeting

Please note that the September meeting has been cancelled due to refurbishment works at the venue.

The next meeting will therefore be on Wednesday 11 October at 7pm.

These meetings are an opportunity for people to come together and share their experiences and support each other as well as a chance for people to feed back into local services through research. Visiting speakers are invited to attend these or additional sessions according to identified need.

New members are requested to contact Michelle michelle.griffiths@live.uwe.ac.uk first to book onto a session. 

Location

The Old Library, Muller Road Eastville BS5 6XP

 

Programme

TBA

Contact

michelle.griffiths@live.uwe.ac.uk or phone 07759 150727

Future Meetings

The group meets every second Wednesday of the month at 7pm.

 

Past Meetings

July 2017

The group looked at people's experiences of using alternative testing services (like medichecks) and heard positive and negative experiences of managing thyroid diseases without access to routine testing (such as vitamin levels, T3, autoimmune antibodies, etc). We discussed people's experiences of adrenal dysfunction and the impact of delayed diagnosis upon the physical (e.g. liver, digestion) and psychological health. We compiled questions for Prof. Dayan who will be giving a talk to the group later in the year.

June 2017

The group enjoyed a mindfulness session from Chris Bowles from Oasis Talk. It was really helpful as he went through 2 guided group meditation sessions, with some teaching and training in between about thoughts and feelings associated with living with and managing chronic illness.

April and May 2017

The first two meetings took place in a lovely setting called the Old Library on Muller Road. We have seven members of the group so far, with a mix of Grave's disease, Hashimoto's and hypothyroidism. We have initially come together to get to know each other and share our stories and experiences, and family members have also felt free to attend. During the second session, we briefly looked at some useful tools to map our symptoms and to consider their impact on our health, emotions and wider lives. Mapping symptoms can be a simple but effective way of seeing the whole picture of our health and communicating our experiences with others, including our healthcare providers. In the next group we hope to list some questions we feel are unanswered and use these to invite speakers to future sessions.