We are leading a James Lind Alliance Priority Setting Partnership on thyroid disease. This will help us identify the top ten research areas that matter most to the thyroid community and shape the future of thyroid research. 

How you can help

Whether you have a thyroid condition, support someone who does, or care for people with thyroid conditions, your opinion matters. Every voice counts and has equal weight. Please complete our survey to help us identify what thyroid research is most important to you and help future research focus on the unanswered questions.

Take the survey today 

Who can take part in our survey?

You can take part in this survey if you are aged 16+ years, based in the UK and one or more of the following apply to you: 

• You have been diagnosed with a thyroid condition by a healthcare professional at any time
• You are a parent, carer or family member of anyone diagnosed with a thyroid condition by a healthcare professional at any time
• You are a healthcare professional who looks after people with thyroid conditions

How long does it take to complete the survey?

The survey will take about five to thirty minutes to complete, depending on how much you want to contribute. Every opinion matters and every response counts equally.

What isn’t included in our survey?

This survey does not cover active treatments for thyroid cancer. Including this would require specialist expertise and resources that unfortunately this project does not have. Our steering group also recognises that thyroid cancer is an area of substantial ongoing research, so this project is focused on areas where there is greater uncertainty.

Can I respond in a different way?

If you would like a paper and/or large print copy, or need assistance with answering this survey, please contact: [email protected]  or 01423 810093

How long is the survey open for?

The survey will on 11 May 2026 and remain open for approximately six weeks.

What happens after completing the survey?

• We will look at all the responses we receive and group them into themes
• We will check existing research to see which questions have already been answered
• We will make a list of unanswered questions and work with the community to put them into priority order
• We will publish and promote the top 10 agreed priorities for future research to address

How will we hold your information?

By taking part in our survey you are agreeing to allow us to publish your responses anonymously and use them in the next stages of this project and other work that may benefit thyroid patients. Any information you choose to share with us will be kept safe and confidential and used in compliance with UK data protection regulations. 

If you choose to stay in touch with us to hear about the next stage of the project, we will ask for your details after completing the survey.

If you change your mind and want us to remove your personal details from our database, you can get in touch at: [email protected] opens in a new tab or 01423 810093

For further information go to BTF privacy policy.

Want to hear more?

If you would like to hear about the survey results and how to get involved in the next phase of the project, please opt in to share your contact details when you complete the survey. Alternatively email us with this request at [email protected]