BTF survey on the impact of Covid-19 on people with thyroid disorders

Thank you to everyone who took part in our survey to share your experiences of how Covid-19 has affected your wellbeing as well as access to care.

The findings can be viewed on the link below

BTF Covid-19 survey

BTF online survey: Patient satisfaction and quality of life in hypothyroidism

People who are treated for hypothyroidism (underactive thyroid) quite commonly report dissatisfaction with their treatment and impaired quality of life (QOL). Thank you to the nearly 1000 hypothyroidism patients who shared your own experiences in our online survey. You can read a summary by Dr Anna Mitchell and the full report below.

Summary of BTF patient satisfaction & QOL survey by Dr Anna Mitchell

Full report BTF patient satisfaction & QOL survey

RESPoND study

Thank you to all the families who participated in the RESPoND study of how the results of positive newborn bloodspot screening are communicated to parents. The results of this study were recently published in the British Medical Journal (BMJ). The study found that despite health professionals’ best efforts, the way in which positive results are communicated still varies. This is largely influenced by the resources and guidance available to them. It concluded that further exploration is needed on how best to support health professionals involved in communicating these results.
Below is a message to participants from Dr Jane Chudleigh, the lead researcher:
“We wanted to take this opportunity to thank all of the staff and parents who have helped us in so many ways during the ReSPoND study including: Chairing our Parent Group, advising us on the study design, taking part in interviews and helping to plan the next stages of the research journey. Even though we are nearing the end of ReSPoND, we are already starting to plan the next steps and design further research to continue to improve parents’ experiences of receiving a positive newborn bloodspot screening result for their child.”
More details are available on the link below