Skip over main navigation
  • Log in
  • Basket: (0 items)
British Thyroid Foundation
01423 810093 Become a member Donate
Menu
  • About us
    • Who we are
    • What we do
    • What we stand for
    • Meet the team
    • Impact
    • Partnership organisations
  • Information
    • Covid-19
    • About your thyroid
    • Living with thyroid disorders
    • Patient leaflets
    • Leaflets in other languages
    • Drugs and medicines updates
    • Articles
    • BTF newsletters
    • Information for professionals
  • Films
  • Support
    • Patient stories
    • BTF events
    • NICE guideline patient info day
    • Local support groups
    • Telephone contacts
    • Patient forums
    • Contact us
  • Get involved
    • Become a member
    • Volunteer with us
    • Our fundraising events
    • Fundraise your way
    • Current fundraisers
    • Recent fundraisers
    • Surveys
    • Recent surveys
    • Regular giving
    • Play the BTF Lottery
    • Making a gift in your Will
    • Give in memory
  • Research
    • Research awards
    • Research news
    • Guidelines and statements
    • BTF co-publications
  • Shop
  • Admin
    • Log in
  • Basket: (0 items)
  • surveys
  1. Get involved
  2. Surveys

Surveys

The BTF is a patient-led organisation and we're often asked by medical and other professionals for help with research projects. Where possible the results and findings of these projects will be published in the BTF newsletter and on this website.

Patient attitudes to surgery and radioactive iodine as a treatment for hyperthyroidism

Hyperthyroidism (or overactive thyroid) affects up to 3% of the UK population. Current treatment options include: antithyroid drugs, radioactive iodine and surgery. We are working with a team of researchers based at Newcastle University who would like to understand more about patients’ understanding of these treatment options and which (if any) of the treatments may offer better outcomes with regard to long term health implications, like safety and quality of life. 

If you have had radioactive iodine therapy or thyroid surgery for your hyperthyroidism, please complete this short survey. 

https://bit.ly/3alKV6e

E-MPATHY Study: Patient experiences of hypothyroidism treatment and care

Thyroid Federation International (TFI) (www.thyroid-fed.org), a global network of patient support organisations has teamed up with four international thyroid experts to conduct research that will help us to understand patient experiences of treatment and care. This E-MPATHY (E-Mode Patient self-Assessment of THYroid therapy) study is being overseen by Picker Institute Europe (Picker), who are an independent healthcare research charity (www.picker.org). Funding for the project is provided by Institut BioChimique SA (IBSA).

TFI are reaching out to patients who have been diagnosed with hypothyroidism, and asking them to complete a questionnaire. To find out more about the study and to access the questionnaire please follow this link.

Patients with Graves' disease still urgently needed for clinical trial 

This study has now stopped recruiting for patients. Thank you to everyone who took part. We will report on the results on the trial when we receive them. 

This phase I study is investigating a potential new drug, K1-70, to treat patients who have Graves’ disease, and patients who would benefit from controlling Thyroid Stimulating Hormone Receptor (TSHR) activity. Patients who were diagnosed and treated for thyroid cancer more than five years ago may also be eligible to take part in the trial.

A Safety Review Committee found the drug to have been safe and well-tolerated in all the patients treated so far. The company is now actively recruiting for their final cohort so please contact the site urgently, before the end of September 2020.

Travel to and from the study site is provided from a patient’s chosen location, as well as accommodation for patients travelling from far, with COVID-19 safety considerations in place.

If you would like some more information or are interested in taking part, please contact the Volunteer Services team at the Medicines Evaluation Unit on 0800 655 6553 and quote study MEU 15/304.

Understanding the Needs of Children & Young People with thyroid conditions

Dr Alyson Norman & Dr Sue Jackson are working with MSc students at the University of Plymouth to research the needs of children and young people with endocrine disorders, such as thyroid problems. They are trying to find out about the social, mental and physical experiences of families living with these conditions. They are also interested in issues and/or concerns related to healthcare. The researchers are looking for young people aged between 10 and 25, or their parents to interview about their experiences.  They hope their research will provide an insight into difficulties young patients may experience and help health professionals better understand their patients’ needs and thus improve things for them.

If you, or your child, would be interested in taking part in this study please contact Alyson on [email protected] or Sue on [email protected]

Study of Graves' disease in young people

Rituximab (rituximab in graves' disease or RIG-D)

Updated February 2020

The clinical trial that is looking to see if the medicine Rituximab can improve outcomes in young people diagnosed with Graves’ disease (the RIG-D trial) finished recruiting participants in August 2018. We expect the results of this trial to be available towards the end of 2021. if you would like information regarding the background to the trial please contact Tim Cheetham by email at [email protected]

TED survey

When you were diagnosed with thyroid eye disease, what support was helpful to you? Was your GP able to help you? What was missing?

We're always interested to hear about your experience for the BTF's thyroid eye disease project. This will help to bring about improvements for future patients. Please email [email protected]

We rely on donations to fund our work supporting and informing people living with thyroid disorders. Please consider making a donation or becoming a member

Donate

Become a member

Back to top

Showing 10 of 0

Latest

  • Jess - thyroid cancer

    Jess - thyroid cancer

    Read about Jess' diagnosis with the rare papillary thyroid cancer of the thyroglossal duct remnant

  • Isle of Wight group

    Isle of Wight group

    Details of the British Thyroid Foundation's Isle of Wight local group

  • Xylia's head shave

    Xylia's head shave

    Read about Xylia's fundraiser for the BTF

  • New Forest Marathon 2020 -  Anna

    New Forest Marathon 2020 - Anna

    BTF Trustee takes on the New Forest Marathon 2020

Most read

  • Thyroid disease and coronavirus (Covid-19)

    Thyroid disease and coronavirus (Covid-19)

    Find information on thyroid disease and Covid-19. Is the Covid vaccine safe for people with thyroid problems?

  • Covid-19 and vaccines

    Covid-19 and vaccines

    Is the Covid vaccine safe for people with thyroid disorders?

  • FAQs about thyroid disease and Coronavirus (Covid-19)

    FAQs about thyroid disease and Coronavirus (Covid-19)

    Dr Petros Perros answers some of your concerns about Covid-19 and thyroid disease

  • Coping with fatigue

    Coping with fatigue

    Fatigue often comes hand in hand with a thyroid disorder. We look at some of the common questions we receive about how to cope better with fatigue

  • Your questions about COVID-19 and the immune system in thyroid patients

    Your questions about COVID-19 and the immune system in thyroid patients

    Dr Petros Perros answers questions about thyroid disease and the immune system

  • Thyroid disease and osteoporosis

    Thyroid disease and osteoporosis

    Read how some thyroid disorders may increase the risk of osteoporosis

  • Jen - thyroid surgery for multinodular goitre

    Jen - thyroid surgery for multinodular goitre

    After undergoing total thyroidectomy, Jen recounts the adjustments she had to make both physically and mentally during her recovery phase

  • Thyroid cancer and coronavirus (Covid-19)

    Find advice for patients with thyroid cancer about coronavirus (Covid-19)

  • Thyroid function tests during the pandemic

    Thyroid function tests during the pandemic

    Information about accessing blood tests for thyroid function during Covid-19

  • Thyroid and diet factsheet

    Thyroid and diet factsheet

    Read about how some foods and supplements can affect your thyroid health and effectiveness of your thyroid medication

Tag cloud

British Thyroid Foundation BTF COVID-19 Graves' disease hyperthyroidism hypothyroidism levothyroxine support thyroid thyroid awareness thyroid cancer thyroid disease thyroid disorders thyroid eye disease thyroid support thyroid surgery

Become a BTF member and receive our newsletter!

Find us

Registered Office
Suite 12, One Sceptre House
Hornbeam Square North
Hornbeam Park
Harrogate
HG2 8PB 

+44 (0)1423 810093
[email protected]

Links

  • Sitemap
  • Accessibility
  • Terms & Conditions
  • Privacy Policy

Follow us

  • Facebook
  • Twitter
  • Instagram
  • Youtube

Copyright © 2019 British Thyroid Foundation. The British Thyroid Foundation is a registered charity: England and Wales No 1006391, Scotland SC046037