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Thyroid disorders are rare in children and newborn babies but if your child is diagnosed, it can be isolating and distressing. We have a variety of resources to help you understand more about how thyroid disease, and how it can affect young people, and to help you connect with others in a similar position. 

Further sources of information

BTF leaflet about Congenital Hypothyroidism

The Scottish Paediatric Endocrine Group (SPEG) supports paediatric endocrine services throughout Scotland in improving standards of clinical care of children through the establishment of specialist peer support, continuous education and training, guideline development, and quality improvement

Public Health Wales has produced some information explaining the newborn bloodspot screening programme in accessible formats Accessible Resources - Public Health Wales (

The Down's Syndrome Association has produced information for parents and carers of children with thyroid disorders including this easy read thyroid factsheet 

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We rely on donations to fund our work providing information and support to help people live better with thyroid disease. Please consider making a donation or becoming a member

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