Thyroid disorders are rare in children and newborn babies but if your child is diagnosed, it can be isolating and distressing. We have a variety of resources to help you understand more about how thyroid disease, and how it can affect young people, and to help you connect with others in a similar position. 

• Thyroid conditions in babies, children and young people: a guide for parents and carers – practical information and case studies for families
• ‘Your Thyroid Broke….but we can fix it’ – a short animated film for younger children 
• 'Congenital hypothyroidism' patient information leaflet
• 'Meet the experts: thyroid disorders in children and young people' - BTF webinar for parents (February 2021)
• Webinar Q&As on managing thyroid disorders in children and young people (Feb 2021)
  
  
• Meet the experts: managing thyroid disorders in children and teenagers - BTF webinar (June 2022)
  
  
  
• Telephone support contacts for parents and carers
• A Closed Facebook Group for Parents of Children with Thyroid Disorders. To join, search for the group on Facebook or email [email protected]  
• Information events for families: read about our most recent Birmingham Children's Conference which took place in June 2019
• Research News - an update on current UK research projects involving young people with thyroid disease 
• Information for teenagers and young adults
• Information about some of the rare thyroid disorders that can affect children
• Take part in a study (for children age 10+): Understanding the needs of children and young people with thyroid disorders
• 'Meet the Experts' webinar on understanding thyroid function tests (November 2021)
• Q&As from webinar about understanding thyroid function tests (November 2021)

Further sources of information

BTF leaflet about Congenital Hypothyroidism

The Scottish Paediatric Endocrine Group (SPEG) supports paediatric endocrine services throughout Scotland in improving standards of clinical care of children through the establishment of specialist peer support, continuous education and training, guideline development, and quality improvement

The Down's Syndrome Association has produced information for parents and carers of children with thyroid disorders including this easy read thyroid factsheet 

Can you help us to help you, please?

We rely on donations to fund our work supporting and informing people living with thyroid disorders. Please consider making a donation or becoming a member

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